Thursday, June 20, 2013

Little bit of this and that.

Today was such a great great day! Asher switched over to the "dreger" style vent yesterday, and today he was super stable so I was able to hold him. It was so amazing. I never realized how great it was to get to hold your newborn for the first time til I had to wait more than three weeks to do it! My love love for these two tiny babies grows so much every day. My heart breaks for the parents we have met that have fallen in love with  their tiny miracles and then the poor sweet babies time is up after such a short time. Anyway, that's way too deep for me. So more good stuff. After they pried my hands off Asher and got him back in his graffe( the bed/incubator)  he was still doing good, so they switched him to a High Flow nasal cannula set up. So it's pretty much just oxygen like you see people toting around, but a little stronger( this is a huge step respiratory wise). He has done very well with all his changes happening today, hopefully  he can stay off the vent for a while if not forever.... Brecken I still having huge oxygen swings, it seems he does them when it's time to feed, and after he is finished ....They think he's Apnic( which i don't even know what that will mean) and has reflux. I hate knowing there is something wrong or off and not having any idea how to fix, or help my little man. He also has 2 freaking hernias!poor little guy. They say it isn't painful or uncomfortable for him, and they will have to surgically fix it once he is bigger(like at least 4 pounds).  It's kind of like our twin to twin stuff, they don't want to do anything to early because it may happen again  and then the baby will have had 2 surgeries rather than one for the same problem.
Thanks for caring about the boys. I'll get pictures up soon.

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